If We Knew Then - Down Syndrome Podcast
We are parents of two children and one of them just happens to have Down syndrome. When Liam was born we didn’t know very much about Down syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share stories, break down stereotypes and help change the narrative by redefining Down syndrome.
Episodes
Thursday May 20, 2021
Thursday May 20, 2021
This week we talk to Julia Toronczak about her experiences and the lessons she’s learned by growing up with her twin brother Michael, who has Down syndrome. We focus on inclusion and equity in our community and beyond.
Beyond The Waves Blog: https://www.beyondthewavesblog.com
Beyond The Waves Podcast: https://www.beyondthewavesblog.com/podcast
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/05/20/56-my-twin-brother-has-down-syndrome-our-conversation-with-julia-toronczak/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday May 13, 2021
Thursday May 13, 2021
Executive Director of ‘Bridgerton’, Julia Anne Robinson, joins us to discuss a film she directed in 2007 called ‘Coming Down The Mountain’ and starring Tommy Jessop and Nicholas Hoult. We breakdown this film that changed our lives and told some truths about the journey that rarely get talked about.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/05/12/55-coming-down-the-mountain-part-2-why-this-movie-is-so-important-an-interview-with-director-julia-anna-robinson/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday May 06, 2021
54. Mother (noun): An Ultimate Example of Its Kind - Our Mother’s Day Message
Thursday May 06, 2021
Thursday May 06, 2021
Happy Mother’s Day! Sunday, May 9, 2021 is Mother’s Day for our Canadian, Australian & American listeners. Mothering Sunday in the UK was back in March and in Mexico, Mothers are celebrated every year on May 10th. Wherever you are, whomever you are and however you celebrate… this episode is for all the Mothers of the world.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/05/06/54-mother-noun-an-ultimate-example-of-its-kind-our-mothers-day-message/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Apr 29, 2021
53. Discussing Infertility and a Down Syndrome Diagnosis with Natalie Spiteri
Thursday Apr 29, 2021
Thursday Apr 29, 2021
In this episode, Physical Therapist, Natalie Spiteri shares her personal journey through infertility, the impact of a diagnosis of Down syndrome and the yearning for the life she imagined beyond what she was told.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/04/29/53-discussing-infertility-and-a-down-syndrome-diagnosis-with-natalie-spiteri/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Apr 22, 2021
52. A Community Conversation with Megyn Price: Celebrating Uncle Bill
Thursday Apr 22, 2021
Thursday Apr 22, 2021
This week we are joined by actress Megyn Price to discuss inclusion, the importance of encouraging others to express their uniqueness and how her Uncle, who had Down syndrome, affected her family in a positive way.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/04/22/52-a-conversation-with-megyn-price-celebrating-uncle-bill/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Friday Apr 16, 2021
51. Eleven Years With Liam: Celebrating Another Trip Around The Sun
Friday Apr 16, 2021
Friday Apr 16, 2021
This year Liam turned 11 and in this episode we reflect where we started, what we've learned and where we are. Let's celebrate... always celebrate.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/04/16/51-eleven-years-with-liam-celebrating-another-trip-around-the-sun/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Apr 08, 2021
Thursday Apr 08, 2021
Another beautiful conversation with Zen Buddhist Priest Karen Maezen Miller. We all have fears. What if we could see what is at the root of these fears, acknowledge and deconstruct them and then continue forward free from those fears.
Her books on Amazon: https://www.amazon.com/Karen-Maezen-Miller/e/B001JP2RQ0/ref=dp_byline_cont_pop_book_1
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/04/08/50-acknowledging-and-dismantling-fears-presence-in-our-lives-an-interview-with-karen-maezen-miller/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Mar 25, 2021
49. Discussing Health and Inclusion with Pediatrician Dr. Mona Patel Gera
Thursday Mar 25, 2021
Thursday Mar 25, 2021
An enlightening conversation with Dr. Mona Patel Gera to answer the questions parents of children with Down syndrome often have.
Health Supervision Guidelines: https://www.healthychildren.org/English/health-issues/conditions/developmental-disabilities/Documents/Health_Care_Information_for_Families_of_Children_with_Down_Syndrome.pdf
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/03/25/49-discussing-health-and-inclusion-with-pediatrician-dr-mona-patel-gera/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Mar 18, 2021
48. World Down Syndrome Day: The Path To Finding Our Celebration
Thursday Mar 18, 2021
Thursday Mar 18, 2021
March 21st is World Down Syndrome Day and we discuss our personal journey to find our celebration and what it means to us.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/03/16/48-world-down-syndrome-day-the-path-to-finding-our-celebration/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Mar 11, 2021
Thursday Mar 11, 2021
As parents, we all find ourselves dealing with confusing emotions and challenges from time to time. In this conversation, Zen Buddhist Priest Karen Maezen Miller, gives us some guidance to help us deal with the negative.
Her books on Amazon: https://www.amazon.com/Karen-Maezen-Miller/e/B001JP2RQ0/ref=dp_byline_cont_pop_book_1
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/03/11/47-what-do-we-do-when-faced-with-challenges-and-negativity-an-interview-with-karen-maezen-miller/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Mar 04, 2021
46. Coming Down The Mountain: Our Interview with Julie Anne Robinson
Thursday Mar 04, 2021
Thursday Mar 04, 2021
Our conversation with Executive Producer and Director of ‘Bridgerton’, Julie Anne Robinson about the film ‘Coming Down The Mountain’ and the importance of inclusion in media.
‘Coming Down The Mountain’ on Prime Video: https://www.amazon.com/gp/video/detail/B082P67X6D/ref=atv_dp_share_cu_r
Frostig School: https://frostigschool.org
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/03/03/46-coming-down-the-mountain-our-interview-with-julie-anne-robinson/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Feb 25, 2021
45. Speech Therapy with Kerri Wake of McRory Pediatrics
Thursday Feb 25, 2021
Thursday Feb 25, 2021
Speech Pathologist, Kerri Wake, joins us to talk about communication, supportive tools parents can provide their children and the pathways to receiving speech therapy in the school setting.
The McRory Pediatrics Website: https://www.mcrorypediatrics.com
The Hanen Centre: http://www.hanen.org/Home.aspx
Early Milestone List: https://speechhearing.columbian.gwu.edu/sites/g/files/zaxdzs1996/f/downloads/Milestonesguide.pdf
Article on the benefits of AAC (speech generating devices): https://digitalcommons.unl.edu/cgi/viewcontent.cgi?article=1088&context=specedfacpub
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/02/25/45-speech-therapy-with-kerri-wake-of-mcrory-pediatrics/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thank you for listening!
We are so happy that we can connect with people from all over the world and we appreciate you. If you would be so kind to rate, subscribe and comment where ever you listen to podcasts, it would help us reach an even larger audience.
All the best to you and please stay in touch. Stephen and Lori Saux