If We Knew Then - Down Syndrome Podcast
We are parents of two children and one of them just happens to have Down syndrome. When Liam was born we didn’t know very much about Down syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share stories, break down stereotypes and help change the narrative by redefining Down syndrome.
Episodes
Tuesday Aug 11, 2020
20. A New School Year: COVID-19, IEPs and Supports - Georgianna Junco-Kelman
Tuesday Aug 11, 2020
Tuesday Aug 11, 2020
Another informative talk with attorney Georgianna Junco-Kelman. What do parents need to know heading into a new school year amidst COVID-19?
Georgianna's Website: http://www.losangelesspecialedattorney.com
CA Special Education Guidelines for COVID-19: https://www.cde.ca.gov/ls/he/hn/specialedcovid19guidance.asp
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/08/11/20-a-new-school-year-covid19-ieps-supports-georgianna-junco-kelman/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Aug 06, 2020
19. PALS Programs - Congratulations Project
Thursday Aug 06, 2020
Thursday Aug 06, 2020
Our interview with members of the PALS Programs. We talk about the organization and specifically their Congratulations Project. Joining us is Co-founder and Executive Director, Jenni Newbury Ross and her mother and brother, Robyn and Jason. We were also joined by Congratulations Project Associate, Grace Wahle and Communications Coordinator, Colton Davies.
Congratulations Project: https://www.congratulationsproject.org
PALS Program: https://www.palsprograms.org
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/08/06/19-pals-programs-congratulations-project/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Jul 23, 2020
Thursday Jul 23, 2020
Our second interview with Ed Casagrande and Matt MacNeil from the Canadian Down Syndrome Society concerning their collaboration with Google AI to create a database that can help train Google’s speech recognition technology to better understand people with Down syndrome.
Donate your voice at: https://projectunderstood.ca
CDSS "Down Syndrome Answers" Initiative: https://cdss.ca/down-syndrome-answers/
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/07/23/18-project-understood-part-2-two-perspectives-of-down-syndrome-ed-casagrande-and-matt-macneil/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Jul 16, 2020
17. Creating a Positive Dental Health Relationship - Dr. Jill Lasky
Thursday Jul 16, 2020
Thursday Jul 16, 2020
Dr. Jill Lasky discusses the importance of Pediatric Dentistry, how to introduce dental care and specifics pertaining to the Down Syndrome community.
Lasky Pediatric Dental Group: https://www.laskypediatricdental.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/07/16/17-creating-a-positive-dental-health-relationship-dr-jill-lasky/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Jul 09, 2020
16. Pushing The Limits - Chris Nikic’s Road To IRONMAN
Thursday Jul 09, 2020
Thursday Jul 09, 2020
Interview with Chris Nikic and his parents, Nik and Patty. Chris is the first person with Down syndrome to complete a half IRONMAN and is training to attempt the full 140.6 mile course in November. We discuss how people with Down Syndrome can do more than ever expected if given the right tools and time.
Chris's Website: https://chrisnikic.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/07/07/16-pushing-the-limits-chris-nikics-road-to-ironman/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Jul 02, 2020
Thursday Jul 02, 2020
Interview with Ed Casagrande and Matt MacNeil from the Canadian Down Syndrome Society concerning their collaboration with Google AI to create a database that can help train Google’s speech recognition technology to better understand people with Down syndrome.
Donate your voice at: https://projectunderstood.ca
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/06/30/15-project-understood-ed-casagrande-and-matt-macneil-the-canadian-down-syndrome-society/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Jun 25, 2020
14. An Honest Community Conversation with Julie Picot
Thursday Jun 25, 2020
Thursday Jun 25, 2020
Our second interview with Julie Picot, a mother of a child with Down Syndrome, and some of the challenges she has faced regarding stereotypes and preconceived notions of her child's disability.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/06/24/14-an-honest-conversation-interview-with-julie-picot/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Jun 18, 2020
13. Early Intervention - At Home Tools and Supports - Caroline Bencze-Fernandez
Thursday Jun 18, 2020
Thursday Jun 18, 2020
Interview with Child Development Specialist, Caroline Bencze-Fernandez. In this second appearance on the podcast, Caroline dives a little deeper into the aspects of Early Intervention, what tools parents can use at home and how therapies for children with Down Syndrome have changed over the years.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/06/17/13-early-intervention-at-home-tools-and-supports-caroline-bencze-fernandez/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Jun 11, 2020
12. Our Interview with Melissa Kynoch - Part 2
Thursday Jun 11, 2020
Thursday Jun 11, 2020
An interview with Melissa Kynoch, known by many for being on the BBC documentary LIFE AND BIRTH along with her sons Dei and Bertie.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/06/11/12-our-interview-with-melissa-kynoch-part-2/2/
BBC 'Life and Birth: https://www.bbc.co.uk/iplayer/episode/m000j6v0/life-and-birth-series-1-episode-4
Wouldn’t Change A Thing:Book- https://www.wouldntchangeathing.org/product/wcat-book-by-celebrate-t21/ FaceBook Page- https://www.facebook.com/wouldntchangeathingdotorg/ Twitter- https://twitter.com/Wouldntchangea1 Website- https://www.wouldntchangeathing.org Email: WCATbook@gmail.com
12 Step Fellowship: https://www.na.org
Disability Film Challenge: https://disabilityfilmchallenge.com
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Tuesday Jun 02, 2020
11. The Responsibility and Power of Words on Social Media - Rachel Mewes
Tuesday Jun 02, 2020
Tuesday Jun 02, 2020
Our Interview with Rachel Mewes to discuss her interactions with Twitter and their reluctance to combat hate speech toward people with Down Syndrome.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/06/02/11-the-responsibility-and-power-of-words-on-social-media-interview-with-rachel-mewes/2/
Making Chromosomes Count: http://makingchromosomescount.co.uk
Making Chromosomes Count on Twitter: https://twitter.com/ChromosomesNews
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday May 28, 2020
10. Our Interview with Melissa Kynoch - Part 1
Thursday May 28, 2020
Thursday May 28, 2020
An interview with Melissa Kynoch, known by many for being on the BBC documentary LIFE AND BIRTH along with her sons Dei and Bertie.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/05/27/10-our-interview-with-melissa-kynoch-part-1/2/
BBC 'Life and Birth: https://www.bbc.co.uk/iplayer/episode/m000j6v0/life-and-birth-series-1-episode-4
Makaton: https://wetalkmakaton.org
The Makaton Charity on Twitter: https://twitter.com/MakatonCharity
Makaton with Lucinda on Twitter: https://twitter.com/makatonlucinda
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Friday May 22, 2020
9. Sibling Advocacy - Interview with Sophia Saux
Friday May 22, 2020
Friday May 22, 2020
An interview with our daughter Sophia to discuss her experiences of having a brother with Down Syndrome.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/05/21/9-sibling-advocacy-interview-with-sophia-saux/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thank you for listening!
We are so happy that we can connect with people from all over the world and we appreciate you. If you would be so kind to rate, subscribe and comment where ever you listen to podcasts, it would help us reach an even larger audience.
All the best to you and please stay in touch. Stephen and Lori Saux