If We Knew Then - Down Syndrome Podcast

16. Pushing The Limits - Chris Nikic’s Road To IRONMAN

Interview with Chris Nikic and his parents, Nik and Patty. Chris is the first person with Down syndrome to complete a half IRONMAN and is training to attempt the full 140.6 mile course in November. We discuss how people with Down Syndrome can do more than ever expected if given the right tools and time.
Chris's Website: https://chrisnikic.com 
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/07/07/16-pushing-the-limits-chris-nikics-road-to-ironman/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

15. Project Understood - Part 1 - Our Community Conversation with Ed Casagrande and Matt MacNeil

Interview with Ed Casagrande and Matt MacNeil from the Canadian Down Syndrome Society concerning their collaboration with Google AI to create a database that can help train Google’s speech recognition technology to better understand people with Down syndrome.
Donate your voice at: https://projectunderstood.ca
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/06/30/15-project-understood-ed-casagrande-and-matt-macneil-the-canadian-down-syndrome-society/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

14. An Honest Community Conversation with Julie Picot

Our second interview with Julie Picot, a mother of a child with Down Syndrome, and some of the challenges she has faced regarding stereotypes and preconceived notions of her child's disability.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/06/24/14-an-honest-conversation-interview-with-julie-picot/2/ 
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

13. Early Intervention - At Home Tools and Supports - Caroline Bencze-Fernandez

Interview with Child Development Specialist, Caroline Bencze-Fernandez. In this second appearance on the podcast, Caroline dives a little deeper into the aspects of Early Intervention, what tools parents can use at home and how therapies for children with Down Syndrome have changed over the years.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/06/17/13-early-intervention-at-home-tools-and-supports-caroline-bencze-fernandez/2/ 
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

12. Our Interview with Melissa Kynoch - Part 2

An interview with Melissa Kynoch, known by many for being on the BBC documentary LIFE AND BIRTH along with her sons Dei and Bertie. 
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/06/11/12-our-interview-with-melissa-kynoch-part-2/2/ 
BBC 'Life and Birth: https://www.bbc.co.uk/iplayer/episode/m000j6v0/life-and-birth-series-1-episode-4 
Wouldn’t Change A Thing:Book- https://www.wouldntchangeathing.org/product/wcat-book-by-celebrate-t21/ FaceBook Page- https://www.facebook.com/wouldntchangeathingdotorg/ Twitter- https://twitter.com/Wouldntchangea1 Website- https://www.wouldntchangeathing.org  Email: WCATbook@gmail.com 
12 Step Fellowship: https://www.na.org 
Disability Film Challenge: https://disabilityfilmchallenge.com 
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

11. The Responsibility and Power of Words on Social Media - Rachel Mewes

Our Interview with Rachel Mewes to discuss her interactions with Twitter and their reluctance to combat hate speech toward people with Down Syndrome. 
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/06/02/11-the-responsibility-and-power-of-words-on-social-media-interview-with-rachel-mewes/2/ 
Making Chromosomes Count: http://makingchromosomescount.co.uk 
Making Chromosomes Count on Twitter: https://twitter.com/ChromosomesNews 
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

10. Our Interview with Melissa Kynoch - Part 1

An interview with Melissa Kynoch, known by many for being on the BBC documentary LIFE AND BIRTH along with her sons Dei and Bertie. 
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/05/27/10-our-interview-with-melissa-kynoch-part-1/2/ 
BBC 'Life and Birth: https://www.bbc.co.uk/iplayer/episode/m000j6v0/life-and-birth-series-1-episode-4 
Makaton: https://wetalkmakaton.org 
The Makaton Charity on Twitter: https://twitter.com/MakatonCharity 
Makaton with Lucinda on Twitter: https://twitter.com/makatonlucinda 
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

9. Sibling Advocacy - Interview with Sophia Saux

An interview with our daughter Sophia to discuss her experiences of having a brother with Down Syndrome. 
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/05/21/9-sibling-advocacy-interview-with-sophia-saux/2/  
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

8. Early Intervention - Interview with Caroline Bencze-Fernandez

Interview with Child Development Specialist, Caroline Bencze-Fernandez. She explains the importance of Early Intervention, how therapies have changed throughout her 30 year career and what parents should know. 
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/05/14/8-early-intervention-interview-with-caroline-bencze-fernandez/2/  
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

7. Prenatal Care and Advocacy - Interview with Julie Picot

Interview with Julie Picot discussing her birth story, some of the misinformation she encountered and how she dealt with the post diagnosis fears. 
Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/05/05/7-prenatal-care-and-advocacy-interview-with-julie-picot/2/ 
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

6. Managing The Stresses - The Emotional Parts of Special Needs Parenting

This episode focuses on a sometimes challenging aspect of parenting a child with Down Syndrome. The emotional part of dealing with IEPs, assessments and evaluations that seem to happen right around our children's birthday celebrations. We discuss how we managed these stresses and how we maybe would have done some things differently. 
Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/04/30/ep-6-managing-the-stresses/3/  
https://www.IfWeKnewThen.com 
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
 

5. Preparing For Your IEP - What We Wish We Knew Then

In this episode we discuss preparations and expectations of IEP meetings, what we wish we would have known years ago and the advantages of having an advocate or attorney by your side. 
Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/04/24/5-preparing-for-your-iep/3/ 
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.