If We Knew Then - Down Syndrome Podcast
We are parents of two children and one of them just happens to have Down syndrome. When Liam was born we didn’t know very much about Down syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share stories, break down stereotypes and help change the narrative by redefining Down syndrome.
Episodes
Thursday May 14, 2020
8. Early Intervention - Interview with Caroline Bencze-Fernandez
Thursday May 14, 2020
Thursday May 14, 2020
Interview with Child Development Specialist, Caroline Bencze-Fernandez. She explains the importance of Early Intervention, how therapies have changed throughout her 30 year career and what parents should know.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/05/14/8-early-intervention-interview-with-caroline-bencze-fernandez/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday May 07, 2020
7. Prenatal Care and Advocacy - Interview with Julie Picot
Thursday May 07, 2020
Thursday May 07, 2020
Interview with Julie Picot discussing her birth story, some of the misinformation she encountered and how she dealt with the post diagnosis fears.
Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/05/05/7-prenatal-care-and-advocacy-interview-with-julie-picot/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Apr 30, 2020
6. Managing The Stresses - The Emotional Parts of Special Needs Parenting
Thursday Apr 30, 2020
Thursday Apr 30, 2020
This episode focuses on a sometimes challenging aspect of parenting a child with Down Syndrome. The emotional part of dealing with IEPs, assessments and evaluations that seem to happen right around our children's birthday celebrations. We discuss how we managed these stresses and how we maybe would have done some things differently.
Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/04/30/ep-6-managing-the-stresses/3/
https://www.IfWeKnewThen.com
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thursday Apr 23, 2020
5. Preparing For Your IEP - What We Wish We Knew Then
Thursday Apr 23, 2020
Thursday Apr 23, 2020
In this episode we discuss preparations and expectations of IEP meetings, what we wish we would have known years ago and the advantages of having an advocate or attorney by your side.
Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/04/24/5-preparing-for-your-iep/3/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Friday Apr 17, 2020
Introduction - Our Down Syndrome Advocacy Story
Friday Apr 17, 2020
Friday Apr 17, 2020
Hello and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn't know very much about Down Syndrome and most of the information we did have didn't seem very hopeful and positive. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome parenting.
Full Episode Transcript:Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/04/23/introduction-our-down-syndrome-advocacy-story/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Sunday Apr 12, 2020
4. In-School Physical Therapy - Down Syndrome - Natalie Spiteri
Sunday Apr 12, 2020
Sunday Apr 12, 2020
PT in School. Qualifying for services and what to expect with a child with Down Syndrome.
Interview with Pediatric Physical Therapist Natalie Spiteri.
Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/04/24/4-in-school-physical-therapy-natalie-spiteri/3/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Sunday Apr 12, 2020
3. Early Intervention Physical Therapy - Down Syndrome - Natalie Spiteri
Sunday Apr 12, 2020
Sunday Apr 12, 2020
Early Intervention PT. What is it? How to get it? What to expect and how can parents of children with Down Syndrome use it to its fullest.
Interview with Pediatric Physical Therapist Natalie Spiteri.
Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/04/24/3-early-intervention-physical-therapy-natalie-spiteri/3/
Gross Motor Skills for Children With Down Syndrome: A Guide for Parents and Professionals (Topics in Down Syndrome) https://www.amazon.com/dp/1606130099/ref=cm_sw_r_cp_api_i_YYaNEb5AEFWZ3
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Sunday Apr 12, 2020
2. All That Annual Stuff - IEP and Assessments
Sunday Apr 12, 2020
Sunday Apr 12, 2020
Dealing with IEP's and Assessments that seem to happen around our children’s birthdays. Talking through the process of these events in our lives and how they effect all IEP families. Not just those associated with Down Syndrome.
Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/04/23/2-all-that-annual-stuff-iep-and-assessments/3/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Sunday Apr 12, 2020
1. COVID-19 and IEPs - Special Episode with Georgianna Junco-Kelman
Sunday Apr 12, 2020
Sunday Apr 12, 2020
What should we do at this time? Are IEP's happening? What should we expect? How does this impact next school year?
We feel fortunate that Liam's Elementary School Team is doing their best to support us in helping Liam access his schoolwork. We know that this is not always the case and that parents are having a lot of questions. We hope this helps to answer some of them. Thank you to Georgianna and the knowledge she shares in this episode.
Special Guest Georgianna Junco-Kelman of https://www.SpecialKidsAttorney.com
Contact your Senator: https://www.senate.gov/general/contact_information/senators_cfm.cfm
Contact your Representative: https://www.house.gov/representatives
Full Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/04/23/1-covid-19-and-ieps-special-episode-with-georgianna-junco-kelman/3/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website www.ifweknewthen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thank you for listening!
We are so happy that we can connect with people from all over the world and we appreciate you. If you would be so kind to rate, subscribe and comment where ever you listen to podcasts, it would help us reach an even larger audience.
All the best to you and please stay in touch. Stephen and Lori Saux