If We Knew Then - Down Syndrome Podcast
We are parents of two children and one of them just happens to have Down syndrome. When Liam was born we didn’t know very much about Down syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share stories, break down stereotypes and help change the narrative by redefining Down syndrome.
Episodes

Thursday Jan 27, 2022
88. Healing Through Yoga: Transform Loss Into Empowerment with Paul Denniston
Thursday Jan 27, 2022
Thursday Jan 27, 2022
We have the privilege of speaking again with our friend Paul Denniston. In this episode we discuss Paul’s new book where he breaks down his practice of healing.
Buy the book: https://www.pauldennistontraining.com/healing-through-yoga
Paul’s Website: https://griefyoga.com
Episode 22 - Paul’s 30 Minute Yoga Nidra Meditation: https://ifweknewthen.podbean.com/e/22-a-meditation-gift-from-paul-denniston/
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/01/27/88-healing-through-yoga-transform-loss-into-empowerment-with-paul-denniston/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

Thursday Jan 20, 2022
87. Downs & Towns: Our Conversation with Houston Vandergriff
Thursday Jan 20, 2022
Thursday Jan 20, 2022
This week we have a wonderful conversation with photographer Houston Vandergriff and his mother Katie. We discuss education, advocacy, focusing on the positives and the importance of finding your passion. Houston has traveled the world and his pictures communicate its beauty in the most breath taking ways.
Houston’s website: https://www.downsandtowns.com/
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/01/20/87-downs-towns-our-conversation-with-houston-vandergriff/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

Thursday Jan 13, 2022
86. Making Changes And A New Beginning
Thursday Jan 13, 2022
Thursday Jan 13, 2022
This week we welcome a New Year and a new school. We discuss how the educational system can make us feel and the importance of making a change when we know it’s right. We address the perceptions of failure and how to move forward after feeling broken.
Episode Transcript: https://mcdn.podbean.com/mf/web/qsd29z/86_Making_Changes_And_A_New_Beginning_2bamo1.mp3
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

Thursday Dec 30, 2021
85. Happy New Year: The Chromosome Song
Thursday Dec 30, 2021
Thursday Dec 30, 2021
The full rendition of the If We Knew Then podcast theme song “Chromosome” by Lori Saux and Stephen Saux.
Arrangement and mixing by Brady Harris.
www.BradyHarrisBand.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/12/30/85-happy-new-year-the-chromosome-song/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

Thursday Dec 23, 2021
84. Happy Everything To Everyone: A Holiday Message
Thursday Dec 23, 2021
Thursday Dec 23, 2021
As the year comes to a close, we share a few thoughts on the gifts of the year.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/12/23/84-happy-everything-to-everyone-a-holiday-message/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

Thursday Dec 16, 2021
83. The Self Determination Learning Circle at Club 21 with Kelly Kulzer-Reyes
Thursday Dec 16, 2021
Thursday Dec 16, 2021
Today we explore the Self Determination Program in California with Kelly Kulzer-Reyes of Club 21. Eighteen states in the US have similar personalized programs that distribute state funds in a way to insure that people with disabilities have access to appropriate services throughout their lifetime. An extremely informative episode for those who want to have more control of the state services provided for their loved ones.
Club 21: https://clubtwentyone.org
Disability Voices United: https://disabilityvoicesunited.org
Independent Facilitator groups:
https://www.guidelightgroup.org/about-us
https://www.neuronav.org/
https://www.allycs.org/
DDS website on Self Determination
https://www.dds.ca.gov/initiatives/sdp/
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/12/16/83-the-self-determination-learning-circle-at-club-21-with-kelly-kulzer-reyes/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

Thursday Dec 09, 2021
82. John’s Crazy Socks - Spreading Happiness with John & Mark Cronin
Thursday Dec 09, 2021
Thursday Dec 09, 2021
In this episode we discuss advocacy in action with entrepreneur and advocate John Cronin and his father Mark. Together they have built the company Johns Crazy Socks, with a business model that Fortune 500 companies aspire to achieve. Through highlighting the strengths of others, cultivating dignity and spreading happiness they are making differences in our community and the world.
Website: https://johnscrazysocks.com/
Dance Party link: Online Dance Party with John (johnscrazysocks.com)
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/12/09/82-johns-crazy-socks-spreading-happiness-with-john-mark-cronin/2/
TEDx Talk on How People with Differing Abilities are Waiting to Help Us: John and Mark X. Cronin Give TEDx Talk on the Power of People with Dif (johnscrazysocks.com)
John Donates $100,000 to the Special Olympics: John's Crazy Socks Donates $100,000 to the Special Olympics (johnscrazysocks.com)
Researcher Publishes Dissertation on Employing People with Differing Abilities at John’s Crazy Socks: St. John’s University Researcher Publishes Dissertation on John’s Craz (johnscrazysocks.com)
John Joins Webinar on Keratoconus: John Cronin Speaks in Webinar on Keratoconus and Down Syndrome (johnscrazysocks.com)
Without the Special Olympics, There is No John’s Crazy Socks: Without the Special Olympics, there is No John's Crazy Socks (johnscrazysocks.com)
Facebook: https://www.facebook.com/johnscrazysocks
Twitter: https://twitter.com/JohnsCrazySocks
LinkedIn: MXC https://www.linkedin.com/in/mxcronin/
LinkedIn: JCS: https://www.linkedin.com/company/11171456/admin/
Instagram: https://www.instagram.com/johnscrazysocks/
YouTube: https://www.youtube.com/c/Johnscrazysocks/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

Thursday Dec 02, 2021
81. USA Skateboarding’s “Skateboarding For All” Initiative with Miki Vuckovich
Thursday Dec 02, 2021
Thursday Dec 02, 2021
If all the world were a skate park, celebrating our abilities and individual expression would be a given. In this episode we talk to Miki Vuckovich from USA Skateboarding about their “Skateboarding For All” initiative. The beauty found in the inclusive skating community is one we strive to cultivate in the classroom and the world. You can join them on December 11th for a Virtual Wrap Party which includes members of the U.S. Olympic team and several skateboarding legends.
USA Skateboarding Web site: www.usaskateboarding.com
USA Skateboarding 2021 Wrap Party (tickets and info): https://usaskateboarding.com/blogs/news/meet-the-team-usa-skateboardings-2021-wrap-party
Miki Vuckovich, USA Skateboarding Director Of Development: miki.vuckovich@usaskateboarding.com
Skateboarding For All initiative announcement: https://usaskateboarding.com/blogs/news/usa-skateboardings-inaugural-skateboarding-for-all-event-los-angeles-november-2021
Inaugural Skateboarding For All clinic, Los Angeles (11/6/21): https://youtu.be/hl4aWq7mWRo
USA Skateboarding, Journey To Tokyo documentary (45 min): https://youtu.be/Y5zbqoKlblg
What Is Adaptive Skateboarding? video (3 min): https://youtu.be/rUgWNT14iSg
Adaptive Skateboarding In The Paralympics video (7 min): https://youtu.be/bM3jKgI2lxg
Oscar Loreto, Jr. (USA Skateboarding Board Member and adaptive pro skater): https://www.instagram.com/oscarloretojr/?hl=en
Katherine Beattie (WCMX athlete): https://www.instagram.com/ktbeattie/?hl=en
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/12/02/81-usa-skateboardings-skateboarding-for-all-initiative-with-miki-vuckovich/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

Thursday Nov 25, 2021
80. Bertie’s Heart Surgery: Talking About The Scary Stuff with Melissa Kynoch
Thursday Nov 25, 2021
Thursday Nov 25, 2021
This week we are grateful to have Melissa Kynoch back with us to tell the story of her son, Bertie’s, heart surgery. It is a very scary experience that about half of all family’s in the Down syndrome community experience. We thank Melissa for opening up to us about the emotions she felt and for sharing all the things she wished she knew then.
12 Step Fellowship: https://www.na.org
Wouldn’t Change A Thing - https://www.wouldntchangeathing.org
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/11/25/80-berties-heart-surgery-talking-about-the-scary-stuff-with-melissa-kynoch/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

Thursday Nov 18, 2021
79. Reaching Our Advocation Milestones As Parents - with Julie Picot
Thursday Nov 18, 2021
Thursday Nov 18, 2021
In this episode we revisit Julie Picot and talk about what the past year has held for her family and their journey. We discuss the milestones reached on her advocacy path with her daughter Elyse and what she wish she would have known earlier.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/11/18/reaching-our-advocation-milestones-as-parents-with-julie-picot/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

Thursday Nov 11, 2021
78. A Son’s Advocacy: Another Conversation with Sader Issa
Thursday Nov 11, 2021
Thursday Nov 11, 2021
In this conversation we sit down with Sader Issa to get an update from the past year after graduating from Dentistry school and what his future holds. Being a man raised by a father with Down syndrome, we also discuss the rewards of advocacy and the awareness and change it creates vs. the negativity that can exist when his story is exposed to the many opinions of social media.
Preemptive Love: https://preemptivelove.org
L’Archie International: http://www.larche.org
Our First Episode with Sader: https://ifweknewthen.podbean.com/e/23-raised-by-a-father-with-down-syndrome-our-interview-with-sadar-issa/
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/11/11/78-a-sons-advocacy-another-conversation-with-sader-issa/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

Thursday Nov 04, 2021
77. Practicing Gratitude Without Expectations: An Interview with Karen Maezen Miller
Thursday Nov 04, 2021
Thursday Nov 04, 2021
November is known as the month of gratitude and there is no one better to talk to about gratitude then our good friend Karen Maezen Miller. Maezen is a Zen Buddhist Priest who consistently gifts us wonderful words of wisdom. Today we discuss the practice of gratitude and how releasing expectations brings us closer to true thankfulness.
Maezen’s website: https://karenmaezenmiller.com
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/11/04/77-practicing-gratitude-without-expectation-an-interview-with-karen-maezen-miller/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

Thank you for listening!
We are so happy that we can connect with people from all over the world and we appreciate you. If you would be so kind to rate, subscribe and comment where ever you listen to podcasts, it would help us reach an even larger audience.
All the best to you and please stay in touch. Stephen and Lori Saux