If We Knew Then - Down Syndrome Podcast
We are parents of two children and one of them just happens to have Down syndrome. When Liam was born we didn’t know very much about Down syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share stories, break down stereotypes and help change the narrative by redefining Down syndrome.
Episodes
Friday Sep 23, 2022
116. Mother Asana: “The Art and Voice of Autism” with Gina Uricchio
Friday Sep 23, 2022
Friday Sep 23, 2022
Mother Asana merges the focus of Ally’s art and expression with Gina’s yoga practice and meditation insights. Gina is a devotee to her Spiritual Practice for over 20 years influenced by many practitioners & styles. Her trainings landed her teaching Slow Flow Yoga, YOGA for Cancer & Mindfulness for the Special Parent. Creating Connection is the cornerstone to her parenting & personal style. In her journey as a ‘warrior mom,’ Meditation & Asana has been instrumental in understanding & healing while raising a family with a special needs.
Website: https://www.motherasana.com/
Pre-Order the book: https://www.motherasana.com/shop/the-art-and-voice-of-autism
Instagram: @mother_asana
FaceBook: @motherasana
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/09/23/mother-asana-the-art-and-voice-of-autism-with-gina-uricchio/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Friday Sep 09, 2022
115. Functional Nutrition with Dr. Vaish Sarathy
Friday Sep 09, 2022
Friday Sep 09, 2022
Vaish is a Functional Nutrition Practitioner and Science Educator. She is the founder of Functional Nutrition for Kids, and Plum Pudding Chemistry, both practices designed to optimize the learning potential of kids with Down Syndrome and/or Autism using both Functional Medicine and Non-Linear Education Principles.
Website: https://functionalnutritionforkids.com
Constipation Tool Kit: https://functionalnutritionforkids.com/constipationtoolkit
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/09/08/115-functional-nutrition-with-dr-vaish-sarathy/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Friday Sep 02, 2022
114. Liam Goes To Middle School: Leaving The Past Behind Us
Friday Sep 02, 2022
Friday Sep 02, 2022
We have learned a lot, some harsh realities and beautiful truths. We now move forward with eyes wide open, ready to learn from where we have been, into the unknown of middle school.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/09/02/114-liam-starts-middle-school/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Friday Aug 19, 2022
Friday Aug 19, 2022
The discussion on Self Determination in episode 83, developed into an examination of the term “Self Determination” and what it means in the scope of determining ones self and ones path. In this episode with Ellen Coulston we discuss Self Determination as a tool to promote independence, confidence and participation by student led IEP planning, making that student a part of the dialogue instead of a 3rd person participant in a conversation about their life goals.
I’m Determined: https://www.imdetermined.org
LifeCourse: https://www.lifecoursetools.com/
Ellen’s Podcast: ieproadtofreedom.com
Ellen on Twitter: https://twitter.com/EllenRita220
CA Transition Alliance: http://www.catransitionalliance.org/catransitionalliance.aspx
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/08/18/113-student-led-ieps-to-determine-ones-own-path-of-self-advocacy-with-ellen-coulston/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Friday Aug 12, 2022
Friday Aug 12, 2022
In this conversation we sit down with Dr. Beverly Celotta. Bev is a retired Licensed Child Psychologist who shares her knowledge about how to set all children up for success.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/08/11/112-dr-beverly-celotta/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Friday Aug 05, 2022
111. Kicking Down Barriers: Our Conversation with College Kicker Caden Cox
Friday Aug 05, 2022
Friday Aug 05, 2022
In this episode we sit down with Caden Cox and his parents, Mari and Kevin, to talk about their history making and game changing journey to inclusion. Caden is the first person with Down syndrome to play as well as score in a NCAA/NJCCA College football game.
Caden’s JakeMax Collection: https://www.jakemax.com/collections/cadens-collection
'NEVER, is not in My Vocabulary' College Paper: https://www.dropbox.com/s/vm0d2tjtqs1r5ss/NEVER%2C%20is%20Not%20in%20My%20Vocabulary.pdf?dl=0
Caden’s College Power Point Presentation: https://www.dropbox.com/scl/fi/7jo7jh80mjs9ir7gmko77/Informative-Speech-Bill-of-Rights.pptx?dl=0&rlkey=trfd9vsx23xcenee826r3jv13
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/08/05/111-kicking-down-barriers-our-conversation-with-college-kicker-caden-cox/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Friday Jul 29, 2022
110. The Future of Research and the Hope on the Horizon with Eric Rubenstein
Friday Jul 29, 2022
Friday Jul 29, 2022
This week we have a wonderful conversation with Dr. Eric Rubenstein, an Assistant Professor in the Department of Epidemiology at Boston University. We discuss equality and inclusion in research as it pertains to Down syndrome.
Eric’s Website: https://sites.bu.edu/rubenstein/
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/07/29/110-the-future-of-research-and-the-hope-on-the-horizon-with-eric-rubenstein/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Friday Jul 22, 2022
109. Parenting Is Parenting: A Conversation with Paul and Kerry Daugherty
Friday Jul 22, 2022
Friday Jul 22, 2022
Today we have an open and candid conversation with the author of ‘An Uncomplicated Life’ Paul Daugherty and his wife Kerry about their approach to early education, college, dating, sex, marriage and lots of other things we are told our kids won’t do. ‘An Uncomplicated Life’ is a book we wish we would have found earlier with the beautiful message of “expecting instead of accepting”. Whether you have a person with Down syndrome in your life or not, this book should be one you read and then share with others.
Paul's Book: https://www.amazon.com/Uncomplicated-Life-Fathers-Exceptional-Daughter/dp/0062359959
Our First Episode with the Daugherty’s (Episode 90): https://ifweknewthen.podbean.com/e/90-an-uncomplicated-life-a-father-s-memoir-of-his-exceptional-daughter-with-paul-and-kerry-daugherty/
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/07/22/109-parenting-is-parenting-a-conversation-with-paul-and-kerry-daugherty/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Friday Jul 15, 2022
108. Playground of Empathy and Empathable with Micah Kessel
Friday Jul 15, 2022
Friday Jul 15, 2022
In this episode we find a way to inclusion through empathy. Our conversation with Micah Kessel was an empowering and insightful discussion offering ways to focus our advocacy and to come from a more nurturing and loving place. Micah is the creator of Empathable and Playground of Empathy. These organizations work nationally with world-renowned academics to bridge science, technology, and art to amplify the intersectional experiences of the underserved at your place of business or learning.
Empathable: https://empathable.com
Playground of Empathy: https://empathable.com/playground/
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/07/14/108-playground-of-empathy-micah-kessel/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Friday Jul 08, 2022
107. Graduating Elementary School: A Culmination of What We Learned
Friday Jul 08, 2022
Friday Jul 08, 2022
Liam graduated from elementary school, on curriculum, in an inclusive classroom with his peers. We reflect on the moments that led to his accomplishment and what we could have done better if we knew then.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/07/07/107-graduating-elementary-school-a-culmination-of-what-we-learned/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Friday Jun 24, 2022
Friday Jun 24, 2022
It was so nice spending some time with founder Ila Halby to talk about the Zeno Mountain Farm Camps, their feature film “Best Summer Ever” and the power of representation in film. Whether used as a noun or a verb, Zeno stands for inclusion.
Zeno’s Website: https://zenomountainfarm.org
Zeno’s IG: https://www.instagram.com/zenomountainfarm/
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/06/23/106-zeno-mountain-farm-telling-stories-of-diversity-and-inclusion-ila-halby/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Friday Jun 17, 2022
Friday Jun 17, 2022
In this episode we are joined by Rob Snow, the founder of The Improvaneer Method. The Improvaneer Method uses improvisation to build skills that will greatly improve social, workplace and lifetime opportunities in those with developmental disabilities. With both in-person and online classes, it is widely assessable and has been a real game changer for many people in our community. We also talk briefly about Rob’s book, ‘What I Should Have Said’ and his ‘Minimize The Mountain’ talk.
Improvaneer Method: https://www.theimprovaneermethod.com/
Rob’s Book ‘What I Should Have Said’: https://www.weneedasign.net/the-book
Minimize The Mountain (YouTube): https://youtu.be/MtZZ_7xZhT0
Stand Up for Downs: https://www.standupfordowns.org
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2022/06/17/105-the-improvaneer-method-using-improvisation-to-build-skills-and-change-perceptions-an-interview-with-rob-snow/2/
Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.
Thank you for listening!
We are so happy that we can connect with people from all over the world and we appreciate you. If you would be so kind to rate, subscribe and comment where ever you listen to podcasts, it would help us reach an even larger audience.
All the best to you and please stay in touch. Stephen and Lori Saux