In this second installment of our three-part siblings series, we visit with Dr. Brian Skotko and Sue Levine to talk about the book they wrote entitled, ‘Fasten Your Seatbelt: A Crash Course on Down Sy...
September 16, 2021
In this first installment of a three part sibling series, we sit down with our 14 year old daughter, Sophia, to talk about her experiences as a sibling of a brother with Down syndrome.
Episode Transcr...
September 9, 2021
As we return to school to find a new unknown, we may find ourselves facing familiar challenges and feelings. In this episode we discuss the importance of a support system that reminds us we are never...
September 2, 2021
What is the purpose of a Special Needs Trust? What is a Living Will? How do I set up a Conservatorship when my loved one is an adult? How much does all this cost? Attorney and advocate, Enrique Perez,...
August 26, 2021
We have the honor again of visiting with Zen Buddhist Priest, Karen Maezen Miller, to discuss the Zen term of a “beginner’s mind” which means an open, innocent and non-judging mind, the mind we bring ...
August 19, 2021
In this episode we visit with Dr. Brian Skotko again and talk about the impact of Alzheimer’s in the Down syndrome community and we discuss some pro-active steps that may help to improve the long-term...
August 12, 2021
This week is part two of our conversation with Liv Meriano and Danielle McKinney, from the Down Syndrome Resource foundation based in British Columbia, Canada. In this episode we continue the discussi...
August 5, 2021
In this week’s episode we are joined by Danielle McKinney and Liv Meriano from the Down Syndrome Resource Foundation to talk about educational tools and strategies parents can use at home and implemen...
July 29, 2021
In this week’s episode Lori and Stephen visit with Jake Pratt, who with a little support, advocacy and inclusion is living his dreams and changing the narrative.
Jake’s UPS Commercial: https://youtu.b...
July 22, 2021
In this week’s episode Lori and Stephen discuss the sometimes difficult action of letting Summer just be Summer.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/07/01/62-summer-ad...
July 15, 2021
In this week’s episode we speak to Lauren Costabile, the founder of Hearts of Joy International, an organization that provides life-saving heart surgery for individuals with Down syndrome all around t...
June 24, 2021
Today we interview Máire, Heidi and Liz about their ‘Downright Discrimination’ legal campaign which fights to change the law of the land and create equality for people with disabilities. Presently, in...
June 17, 2021
Today we have a ‘Community Conversation’ with advocate Mary Cole discussing her inspiring experience with inclusion. Mary lives in Cambridge, England and has a 14 year old son with Down syndrome name...
June 10, 2021
In this week’s episode Dr. Brian Skotko shares the most up to date information surrounding the effects of COVID-19 on individuals with Down syndrome. We discuss the importance, safety and science of t...
June 4, 2021
In this week’s episode we revisit one of our earlier conversations. We had the honor of talking to Chris Nikic and his parents, Nik and Patty last summer. In November Chris became the first person wit...
May 28, 2021
This week we talk to Julia Toronczak about her experiences and the lessons she’s learned by growing up with her twin brother Michael, who has Down syndrome. We focus on inclusion and equity in our com...
May 20, 2021
Executive Director of ‘Bridgerton’, Julia Anne Robinson, joins us to discuss a film she directed in 2007 called ‘Coming Down The Mountain’ and starring Tommy Jessop and Nicholas Hoult. We breakdown th...
May 13, 2021
Happy Mother’s Day! Sunday, May 9, 2021 is Mother’s Day for our Canadian, Australian & American listeners. Mothering Sunday in the UK was back in March and in Mexico, Mothers are celebrated every...
May 6, 2021
In this episode, Physical Therapist, Natalie Spiteri shares her personal journey through infertility, the impact of a diagnosis of Down syndrome and the yearning for the life she imagined beyond what ...
April 29, 2021
This week we are joined by actress Megyn Price to discuss inclusion, the importance of encouraging others to express their uniqueness and how her Uncle, who had Down syndrome, affected her family in a...
April 22, 2021
This year Liam turned 11 and in this episode we reflect where we started, what we've learned and where we are. Let's celebrate... always celebrate.
Episode Transcript: https://ifweknewthen701833686.wo...
April 16, 2021
Another beautiful conversation with Zen Buddhist Priest Karen Maezen Miller. We all have fears. What if we could see what is at the root of these fears, acknowledge and deconstruct them and then conti...
April 8, 2021
An enlightening conversation with Dr. Mona Patel Gera to answer the questions parents of children with Down syndrome often have.
Health Supervision Guidelines: https://www.healthychildren.org/English/...
March 25, 2021
March 21st is World Down Syndrome Day and we discuss our personal journey to find our celebration and what it means to us.
Episode Transcript: https://ifweknewthen701833686.wordpress.com/2021/03/16/48...
March 18, 2021
As parents, we all find ourselves dealing with confusing emotions and challenges from time to time. In this conversation, Zen Buddhist Priest Karen Maezen Miller, gives us some guidance to help us dea...
March 11, 2021
