If We Knew Then - Down Syndrome Podcast
29. Insights Into Our First COVID-19 IEP Session

29. Insights Into Our First COVID-19 IEP Session

October 15, 2020

We just had our first Zoom IEP session since the pandemic started and we have found several new things that parents should be aware of. We also further discuss ways to prepare for these meetings and touch on questions every parent should ask their IEP team.

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/10/15/29-insights-into-our-first-covid-19-iep-session/2/ 

Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com  to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

28. A Story of Inclusion with Eleanor Baggaley – ‘Ava the Mermaid’

28. A Story of Inclusion with Eleanor Baggaley – ‘Ava the Mermaid’

October 8, 2020

Our conversation with author, wife, mother of three and Down syndrome advocate, Eleanor Baggaley. We discuss inclusion and her children’s books, particularly ‘Eva the Mermaid’. Eleanor also shares about her work with the organization Positive About Down Syndrome and some of her future plans of advocacy in the community.

Eleanor’s Website: https://www.eleanorbaggaley.com/shop

Positive About Down Syndrome: https://positiveaboutdownsyndrome.co.uk

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/10/08/28-a-story-of-inclusion-with-eleanor-baggaley-author-of-ava-the-mermaid/2/

Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 

27. Our IEP Process - Some Things We Have Learned

27. Our IEP Process - Some Things We Have Learned

October 1, 2020

IEP's can be very overwhelming especially when you feel like you don't have all the information that you want to have. In this episode we share some of the things we have learned to be helpful during this sometimes stressful process and ways to advocate for your child while still keeping your peace.

 

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/09/28/27-our-iep-process-somethings-we-have-learned/2/ 

 

Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

26. PALS Programs - A Deeper Conversation About Down Syndrome

26. PALS Programs - A Deeper Conversation About Down Syndrome

September 24, 2020

Our second interview with members of the PALS Programs. We talk about how the PALS Programs is planning for future camps and some of the more personal experiences the founders of the organization have with Down syndrome. Joining us is Executive Director, Jenni Newbury Ross and her mother Robyn and brother Jason. We were also joined by Congratulations Project Associate, Grace Wahle and Communications Coordinator, Colton Davies. 

Congratulations Project: https://www.congratulationsproject.org

Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

25. A Right to Celebrate - When the Medical Profession Steals the Joy of New Parents - Rachel Mewes

25. A Right to Celebrate - When the Medical Profession Steals the Joy of New Parents - Rachel Mewes

September 17, 2020

Our second interview with Rachel Mewes. Rachel is a contributing editor to Making Chromosomes Count, the Down syndrome community newspaper. She opens up on her not so uncommon birth story and the prejudices she found in the medical profession.

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/09/17/25-a-right-to-celebrate-when-the-medical-profession-steals-the-joy-of-new-parents-rachel-mewes/2/

Making Chromosomes Count: http://makingchromosomescount.co.uk 

Making Chromosomes Count on Twitter: https://twitter.com/ChromosomesNews 

Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 

24. The Importance of Disability Inclusion in Film - Nic Novicki

24. The Importance of Disability Inclusion in Film - Nic Novicki

September 11, 2020

Comedian, actor, producer and disability advocate Nic Novicki joins us to talk about the Easterseals Disability Film Challenge and the importance of disability inclusion in film.

Film Challenge Website: https://disabilityfilmchallenge.com 

Our 2020 EDFC entry: https://youtu.be/WiX-rt51szo 

All the challenge’s films on YouTube: https://www.youtube.com/playlist?list=PLOhZ4i5Tnk3iq44Tzn03rBMOcr0bqFrnV 

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/09/11/24-the-importance-of-disability-inclusion-in-film-nic-novicki/2/  

Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

23. Raised by a Father with Down Syndrome - Our Interview with Sader Issa

23. Raised by a Father with Down Syndrome - Our Interview with Sader Issa

September 3, 2020

Our enlightening and inspiring interview with Sader Issa. As parents we are always told what our children will never do.  What if those limits were not part of the conversation?

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/09/03/23-raised-by-a-father-with-down-syndrome-our-interview-with-sadar-issa/2/ 

Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 

22. A Meditation Gift from Paul Denniston - 30 Minute Yoga Nidra Guided Meditation

22. A Meditation Gift from Paul Denniston - 30 Minute Yoga Nidra Guided Meditation

August 27, 2020

Paul Denniston has gifted us a 30 minute Yoga Nidra Guided Meditation. Enjoy. 

Paul’s Website: https://griefyoga.com

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/08/27/22-a-meditation-gift-from-paul-denniston/2/ 

Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

21. A Conversation About Healing and Self Care with Paul Denniston

21. A Conversation About Healing and Self Care with Paul Denniston

August 27, 2020

Paul Denniston discusses how we can all heal through meditation and his Grief Yoga. 

Paul’s Website: https://griefyoga.com

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/08/20/21-a-conversation-about-healing-and-self-care-with-paul-denniston/2/ 

Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

20. A New School Year: COVID-19, IEPs and Supports - Georgianna Junco-Kelman

20. A New School Year: COVID-19, IEPs and Supports - Georgianna Junco-Kelman

August 11, 2020

Another informative talk with attorney Georgianna Junco-Kelman. What do parents need to know heading into a new school year amidst COVID-19? 

Georgianna's Website: http://www.losangelesspecialedattorney.com 

CA Special Education Guidelines for COVID-19: https://www.cde.ca.gov/ls/he/hn/specialedcovid19guidance.asp 

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2020/08/11/20-a-new-school-year-covid19-ieps-supports-georgianna-junco-kelman/2/  

Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

 

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